Books

  1. Official Patient's Sourcebook on Epidermolysis Bullosa, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Epidermolysis Bullosa, The: A Revised and Updated Directory for the Internet Age

  2. 2002 Official Patient's Sourcebook on Fibromyalgia, The: A Revised and Updated Directory for the Internet Age

    2002 Official Patient's Sourcebook on Fibromyalgia, The: A Revised and Updated Directory for the Internet Age

  3. Official Patient's Sourcebook on Frozen Shoulder, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Frozen Shoulder, The: A Revised and Updated Directory for the Internet Age

  4. Official Patient's Sourcebook on Goodpasture Syndrome, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Goodpasture Syndrome, The: A Revised and Updated Directory for the Internet Age

  5. The Official Patient's Sourcebook on Addison's Disease: A Revised and Updated Directory for the Internet Age

    The Official Patient's Sourcebook on Addison's Disease: A Revised and Updated Directory for the Internet Age

  6. Official Patient's Sourcebook on Juvenile Rheumatoid Arthritis, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Juvenile Rheumatoid Arthritis, The: A Revised and Updated Directory for the Internet Age

  7. 2002 Official Patient's Sourcebook on Lupus, The: A Revised and Updated Directory for the Internet Age

    2002 Official Patient's Sourcebook on Lupus, The: A Revised and Updated Directory for the Internet Age

  8. Official Patient's Sourcebook on Macular Pucker, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Macular Pucker, The: A Revised and Updated Directory for the Internet Age

  9. Official Patient's Sourcebook on Hepatitis A, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Hepatitis A, The: A Revised and Updated Directory for the Internet Age

  10. Official Patient's Sourcebook on Hepatitis B, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Hepatitis B, The: A Revised and Updated Directory for the Internet Age

  11. Official Patient's Sourcebook on Hiatal Hernia, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Hiatal Hernia, The: A Revised and Updated Directory for the Internet Age

  12. 2002 Official Patient's Sourcebook on Indigestion, The: A Revised and Updated Directory for the Internet Age

    2002 Official Patient's Sourcebook on Indigestion, The: A Revised and Updated Directory for the Internet Age

  13. Official Patient's Sourcebook on Inguinal Hernia, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Inguinal Hernia, The: A Revised and Updated Directory for the Internet Age

  14. Official Patient's Sourcebook on Intestinal Pseudo-Obstruction, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Intestinal Pseudo-Obstruction, The: A Revised and Updated Directory for the Internet Age

  15. 2002 Official Patient's Sourcebook on Irritable Bowel Syndrome, The: A Revised and Updated Directory for the Internet Age

    2002 Official Patient's Sourcebook on Irritable Bowel Syndrome, The: A Revised and Updated Directory for the Internet Age

  16. Official Patient's Sourcebook on Lactose Intolerance, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Lactose Intolerance, The: A Revised and Updated Directory for the Internet Age

  17. Official Patient's Sourcebook on MDMA Dependence, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on MDMA Dependence, The: A Revised and Updated Directory for the Internet Age

  18. Official Patient's Sourcebook on Osteogenesis Imperfecta, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Osteogenesis Imperfecta, The: A Revised and Updated Directory for the Internet Age

  19. Official Patient's Sourcebook on Whipple's Disease, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Whipple's Disease, The: A Revised and Updated Directory for the Internet Age

  20. Official Patient's Sourcebook on Wilson's Disease, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Wilson's Disease, The: A Revised and Updated Directory for the Internet Age

  21. Official Patient's Sourcebook on Zollinger-Ellison Syndrome, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Zollinger-Ellison Syndrome, The: A Revised and Updated Directory for the Internet Age

  22. Official Patient's Sourcebook on Prescription Opioids Dependence, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Prescription Opioids Dependence, The: A Revised and Updated Directory for the Internet Age

  23. Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1, The: A Revised and Updated Directory for the Internet Age

    Official Patient's Sourcebook on Multiple Endocrine Neoplasia Type 1, The: A Revised and Updated Directory for the Internet Age

  24. Official Parent's Sourcebook on Haemophilus Influenzae Serotype B, The: A Revised and Updated Directory for the Internet Age

    Official Parent's Sourcebook on Haemophilus Influenzae Serotype B, The: A Revised and Updated Directory for the Internet Age

  25. 2002 Official Patient's Sourcebook on Anthrax, The: A Revised and Updated Directory for the Internet Age

    2002 Official Patient's Sourcebook on Anthrax, The: A Revised and Updated Directory for the Internet Age

The Official Patient's Sourcebook on Epidermolysis Bullosa: A Revised and Updated Directory for the Internet Age
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    		The Official Patient's Sourcebook on Epidermolysis Bullosa: A Revised and Updated Directory for the Internet Age
    Icon Health Publications
    Manufacturer: Icon Health Publications
    ProductGroup: Book
    Binding: Paperback

    GeneralGeneral | Medicine | Subjects | Books
    DermatologyDermatology | Specialties | Medicine | Subjects | Books
    DermatologyDermatology | Internal Medicine | Medicine | Medical | Professional & Technical | Subjects | Books
    ASIN: 0597833729

    Book Description

    This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to epidermolysis bullosa (also Acantholysis Bullosa; Acanthosis Bullosa; Bullosa Hereditaria; Dominant and recessive epidermolysis bullosa; Dowling-Meara Syndrome; Epidermolysis Bullosa Acquisita), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on epidermolysis bullosa. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.

    Download Description

    This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to epidermolysis bullosa, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on epidermolysis bullosa. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Epidermolysis Bullosa: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Epidermolysis Bullosa; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Epidermolysis Bullosa; Chapter 5. Books on Epidermolysis Bullosa; Chapter 6. Periodicals and News on Epidermolysis Bullosa; Chapter 7. Physician Guidelines and Databases; Chapter 8. Dissertations on Epidermolysis Bullosa; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; EPIDERMOLYSIS BULLOSA GLOSSARY; INDEX. Related topics include: Acantholysis Bullosa, Acanthosis Bullosa, Bullosa Hereditaria, Dominant and recessive epidermolysis bullosa, Dowling-Meara Syndrome, Epidermolysis Bullosa Acquisita, Epidermolysis Bullosa Hereditaria, Epidermolysis Bullosa Letalias, Epidermolysis bullosa letalis, Epidermolysis bullosa simplex, Epidermolysis Hereditaria Tarda, Goldscheider's Disease, Hallopeau-Siemens Disease, Heinrichsbauer Syndrome.

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    3. Regulated Chemicals Directory
    4. Official Parent's Sourcebook on Menkes Disease, The: A Revised and Updated Directory for the Internet Age
    5. Official Patient's Sourcebook on Fahr's Syndrome, The: A Revised and Updated Directory for the Internet Age
    6. Official Parent's Sourcebook on Childhood Cerebral Astrocytoma, The: A Revised and Updated Directory for the Internet Age
    7. 2002 Official Patient's Sourcebook on Prescription Drug Dependence, The: A Revised and Updated Directory for the Internet Age
    8. Official Patient's Sourcebook on Diphtheria, The: A Revised and Updated Directory for the Internet Age
    9. Official Patient's Sourcebook on Epidermolysis Bullosa, The: A Revised and Updated Directory for the Internet Age
    10. Official Patient's Sourcebook on Aspergillosis, The: A Revised and Updated Directory for the Internet Age

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